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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM

Trisomy13Archive.com


This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see:
http://www.livingwithtri13.org

To UPDATE AN ALBUM
please email Vanessa@livingwithtri13.org

Videos and Presentations

 HOPE, not false HOPE, but REAL HOPE "REALISTIC HOPE"
and the REALITY knowing these children will reach our arms moves trisomy families forward.
The internet has provided a way for many families living with trisomy variations
to share their time with their precious child. Carrying to term against the pressures of society around them.

Many of our albums include videos and presentations - below is a quick list to view these presentations
(Don't miss our Homepage presentation)
 

Album includes videos! VIDEOS & PRESENTATIONS - General/Educational Trisomy 13  (Also highlighting Trisomy 21 (Down Syndrome), Trisomy 18 (Edward Syndrome), and other inspirational videos, Embracing Life - One Moment at a time. )
The most common Trisomy is Down Syndrome - Trisomy 21. There are many living survivors. Down Syndrome: The Real Deal An updated new video presentation of little Nolan A Life Worth Living - Nolan (Trisomy 21)

TRISOMY 13 AWARENESS

FEATURED PRESENTATIONS:
There is no Foot too small that it cannot leave an imprint on this WORLD

Trisomy children and families face many of the same challenges that come with a trisomy genetic profile. View this well done news commentary on the early journey of Mieko - Full trisomy 18 (Birth, heart surgery- enjoying life)
Mieko’s you tube videos
"Down the Road of Bittersweet"  a moving video montage by Prenatal Partners for Life  Theraputic Abortion?
99 Balloons - Trisomy 18 (Edward's Syndrome), A touching slideshow and video presentation of Elliot’s life MISS Foundation~ Silent Birth, Stillbirth and MISSing Angels Video
Click Here for Video Montage: Lessons Learned, by a 9 year old boy describes challenges to his little brothers’ life that taught him many lessons.
Annalise’s Legacy: Holoprosencephaly & Carrying to Term
A family with love and courage carried Annalise to term and her short life continues to touch many lives, long after she went to be with the Lord.		 Now I Lay Me Down to Sleep (NILMDTS) - Trisomy
NILMDTS is a network of affiliated photographers who graciously donate their time and talents to families and are proud to be able to offer services at no cost to families facing a poor diagnosis for their child.
Perinatal Hospice Care- A “must see” for Prenatal Families with a Poor Prenatal Diagnosis After learning that their unborn babies carried fatal genetic flaws, two families turned to specialized hospice programs for support.
VIDEOS & MONTAGES created for children Living with Trisomy13
 Victoria Sofia Peña Vaccaro

FEATURED PRESENTATION: Nathan Shepherd

Max Andrew Kroeker
Caroline "Cara" Juliet Dance
Nathan Shepherd 
Koray Kutlay Kebir
Bryson Elliot Allen Nault
Devon Stewart Victor
Click here to view all Children Living with Trisomy 13
VIDEOS & MONTAGES created for Treasured Trisomy 13 Memory Albums
Jonathan Spaugh  

FEATURED VIDEO: Hailey Marie Glavin 
Annika Nynke Lieve Henry David White
Michael Dominic Moore Angel Gumataotao
Elijah Thomas Wilson Karrae Hatton
John-Robert Martin Logan Hunter Popejoy
Maya Gindele Tindra
Corbin Glen Flax Fleur Osté-Blom
Nicholas Wyatt Usher Melina Demers
Ivey Marie Queen Naylah Granger
Gemma Therese Holihen David Michael Whittenton
Amaya Faith Lynch Rhema
Sebastian Gonzalez Kia Lien Emma-Lee
Katherine Elizabeth Verjano James Owen
Lauren Elizabeth Duggan Austin Sean Hampton
Eliza Bernice Delgado Alyssa
Kambry Tolbert Faith Constance Carlson
Annie Mary Farlow Logan Hunter Popejoy
Angeliyah Grace Izzi  Samuel Mabeus
Nicholas “Dalton” Martini Jacob Zoay Marquez


 

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
 All information found on this site was submitted to us directly by the families
and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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