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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM


This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see:

please email Vanessa@livingwithtri13.org
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Trisomy 13 Syndrome Photos & Updates
Prenatal Diagnosis Albums


Patau's Syndrome Prenatal Diagnosis
"Miracles in Progress"

We bless and honor these families who are continuing forward with their pregnancy. With faith, hope and love, they are embracing each precious moment they have with their child. Please keep all our trisomy children and families in your daily prayers.

Bella Grace Tillett
Due: Sept 21, 2010
Stanford, KY  
Click here for details
Jonathan Francis Byer
Due: August 3, 2010
Hannover, Germany
Click here for details
Ethan Robert Hoff
Due: August 10, 2010
Independence, MO
Click here for details

Are you pregnant with a Trisomy 13 diagnosis
and choosing to carry to term?

People love having a visual of who they are praying for. If interested, here is what we need to create an album page. Suggested info to provide to us: Your name, Child's name, Birth date, City, State, E-Mail and Web Address to link, type of trisomy 13, brief update on child.  Please also attach an ultrasound photo and / or prenatal or family photos as you wish.

Don't Miss!!

Request your FREE Gemma Bear

Inspired by Gemma
Letters to Darcy
by Tracy Ramos

Prenatal Diagnosis Information Package - Compiled by Kylie Sheffield (mum of Daniel, full Trisomy 13) in consultation with families on this web site

The Living with Trisomy 13 community encourages prental diagnosis families to reach out to this wonderful  organization Now I Lay Me Down to Sleep  that will help you capture the very precious time you will have with your child.

From the Heart of a Parent
Parents experiences with infant loss and receiving
 NILMDTSremembrance photography services.
Click here for Prenatal Resources for Trisomy 13


Now I Lay Me Down to Sleep - NBC's
Today Show - 2008-03-05

LWT13 General Message Board
Members include Families in all stages of the trisomy journey. (Prenatal, Living and Grief)

Be sure to visit the DONíT MISS section off our NEWLY DISGNOSED Support page.


Are you pregnant with a Trisomy 13 diagnosis and choosing to carry to term?
Would you like to share your prenatal journey?
We can create a Prenatal Album page.
Click here to send your information to stories@LivingWithTrisomy13.org


"Those who don't allow themselves to bring these kids into the world
will never experience the special blessings these kids bring.
"  ~Sharon Cavino


"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.  My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth,  your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be."
Psalm 139:13-16


Other Albums

Living with Trisomy 13 Album for children living with Trisomy 13

Treasured Memories Album for families who embraced life & have loved and lost their precious Trisomy 13 child.


Have a child living with Trisomy 13 syndrome - a Patau syndrome survivor?
We would love to add your child to our Album.
Click here to send us their information.

Please visit our "Sister" Trisomy 13 - Patau Syndrome sites

Click here to visit a translation of a German Trisomy 13 photos site

Prenatal Partners Trisomy 13 Stories

If you are the parent of a child with Trisomy please visit Tracking Rare Incidence Syndromes (TRIS) and find out how adding your information to their database can help increase Trisomy awareness. Click here for more info...




All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.

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