Trisomy 13 Grief Support & Resources

Grief Support

Treasured Memory YaHoo Group for families who have shared on the Treasured Memory Album pages. Embracing Life, One moment at a time^TM... Here you can celebrate your child’s life and share with others who have lived with a diagnosis of Trisomy 13 - Patau Syndrome. We would like to add your child to our Treasured Click here to send their information to info@LivingWithTrisomy13.org

*The MISS Foundation offers support for parents who have lost a child under any circumstance. The online forums help parents support each other in all areas of their lives – we walk with you in your grief. There are many different forums to choose from…Select forums to register. MISS Foundation~ Silent Birth, Stillbirth and MISSing Angels Video
**** I highly recommend this site! I think this is a great support forum for those walking through their grief stages...It is overseen by a counselor... You can find a support groups in your area, or begin one of your own with their resources. Family support, The Kindness Project, Grief conventions and more....***** ***Stillbirth and Child Death***
MISS Foundations Featured Video - Founder and CEO, Dr. Joanne Cacciatore, talks about this amazing organization.
Death Talk - a FREE podcast available online or through iTunes, hosted by Dr. Joanne Cacciatore and Katie Dean on the Global Grief Network. Exploring biopsychosocial effects of tragedy and experience the wisdom inherent in the mourning process. Topics such as cultural responses to loss, ritualization, empiric research, and the neuroscience of loss.

a SMALL VICTORY – turning misfortune into memories A Small Victory is a 501(c)(3) non-profit organization offering support to newly bereaved parents by providing ‘Loss Kits’ which will gently guide them in creating memories to last a lifetime.

A Place to Remember - Uplifting support resources for those who have been touched by a crisis in pregnancy or the death of baby.

Rowan Tree Foundation - Helping Families Heal after the loss of a precious child.

The Compassionate Friends - Grief Support After the Death of a Child - The mission of The Compassionate Friends is to assist families toward the positive resolution of grief following the death of a child of any age and to provide information to help others be supportive. Newsletters and Yearly Conferences

Infants Remembered In Silence - Offering parents, families, friends and professionals support, education and resources on the death of a child in early pregnancy (miscarriage, ectopic pregnancy etc.), or from premature birth, stillbirth, neo-natal death, birth defects, sudden infant death syndrome (SIDS), illness and all other types of infant and early childhood death.

Katherine Elizabeth Foundation Providing hope, support, and healing to the families. Local Florida Support.

Just a Cloud Away "Love Talk" Grieving Ideas to Cradle Your Pain ~ Make your own Trisomy 13 Awareness Ribbon

Tips to Stop the Production of Breast Milk

More Tips to Stop the Production of Breast Milk

Bereaved Parents Wish List

Grief Resources and Support (Parent Recommended) Benotafraid.net is an online outreach to parents who have received a poor or difficult prenatal diagnosis.

Healing Hearts

Jakob's Room...A Lasting Kindness - an upcoming book and site to share stories about how going through infertility and grief from the loss of a loved one can be done by "Trusting the Journey" - We believe that every human acquires certain gifts...a tender touch, the exact kind word or deep unrelenting passion, when faced with difficult journeys. Jakob's Room was founded to help create a special room in hospitals - a space set aside for spending time together as a family after losing a loved one.

This is a wonderful Grief support site with many resources.
http://www.handonline.org/resources/index.html

Trisomy 13 MSN Support Group is set up for anyone who is facing a Trisomy 13 diagnosis, or anyone who would like to share their experience of Trisomy 13. It is a place to come to meet other families who have experienced Trisomy 13 and to get or offer support of a trisomy 13 diagnosis, pre or post~natal or even for grief support. It is a place where we all become family and share our joys and sorrows and feel comforted knowing that others here understand what we have been through. Lorie who oversees the above msn board also has a few other sites. The links are off her page for Kia,

Andrew....Our Miracle, Our Angel "Don't miss out on a blessing just because it isn't packaged the way you expect." A quote from Andrew's mom, Doris

Heartprints Photo Retouching - What is Heartprints? Heartprints is a free digital photo retouching service for families who have lost a child. Many parents are excited to see the photos of their angels for the first time, only to have that excitement turn to dismay when the photos simply do not depict the child they remember. Other parents find it difficult to share their pictures with friends and family, afraid of the reaction they may get if their angel looks less than perfect. Using photo editing software, I can correct discoloration, skin slippage, and other esthetic issues that take away from the natural beauty of your child.

Quilt of Memories (Add your child)

Frans Candles- Custom made Candles

Immediate Support

Do you want to talk with someone as soon as possible? Please click here.

Complimentary Services

Keepsake Bracelets ~ (FREE) Complementary to those who have experienced Pregnancy or Infant Loss. Bracelet was "inspired by Angel Austin and Katie Reed"

The mission of A Butterfly’s Touch
is to share the compassion of Jesus Christ by providing support to parents experiencing infant-loss during their time of need. We accomplish this by providing memory boxes and remembrances for the parents; providing information and support through our free lending library and; helping to lessen financial burdens through a fund to help with funeral and burial expenses

Support in dealing with Grief

A Mother’s Heart Ministry

– Offering support, compassion, encouragement and hope. Have you experienced the death of a young baby or child? Infertility, An Adverse Prenatal Diagnosis? Are you Choosing to continue your pregnancy? Post Abortion Support, healing from the wounds of Abortion. Support Groups.

-Contact Elisabeth for support - Elisabeth was counseled to abort her child with Trisomy 13. She chose to carry her baby full term and tells of the blessing she received for the brief time she had their Katie. Elisabeth and Steve are available to offer you support. You may call or e-mail her for support. Click here to read the letter by Elisabeth Slotkin.
-A father's perspective on having a Trisomy 13 child. Beautiful photos of Katie narrated by her Dad, Steve Slotkin

Bookss

A children's book - "Always My Twin "

for young children who have experienced the death of their twin sibling. More recommended books

Articles - Magazines - Blogs

Infant death: Grief and the path to loving remembrance Infant death causes heart-wrenching grief. A Mayo Clinic psychologist offers parents insight and hope.
By Shawna Ehlers, Ph.D.

Centering Corporation and Grief Digest Magazine has many pamphlets, short stories, and books for all stages of grief for parents, siblings, grandparents, and for many kinds of death that families will deal with.