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Trisomy13Archive.com


This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see:
http://www.livingwithtri13.org

To UPDATE AN ALBUM
please email Vanessa@livingwithtri13.org
 

 

 

 

 

Letter to Physicians:
Considerations in making a specified Plan of Care

·        Right to Life and Right to Die with Christian Dignity

 

Although there are many denominations of Christianity, there are several fundamental values intrinsic to all Christians.  Unfortunately, some parents may not be able to communicate inherit Christian beliefs during a time of distress and to others, they may be still learning what it means to live out their faith (faith in action is a learning process). 

 

If you are a physician or a person working with a Christian family and do not understand the families Christian beliefs, ask them to tell you about them.  Beyond understanding their belief system, each citizen of the United States has the right to communicate directives for their child's care within their rights as parents and their rights to practice religion freedoms. 

 

In relation to those who are sick, handicapped or disabled, the Christian beliefs are promulgated in the Catholic Catechism 2276-2279, and further elaborated on in the Declaration on Euthanasia (1980), Prepared by the Sacred Congregation for the Doctrine of the Faith.  I encourage all healthcare workers look into these sources (as links to these sites have been provided for your convenience).  Further information is available for you to peruse in The Charter For Health Care Workers written by the Pontifical Council for Pastoral Assistance to Health Care Workers in Vatican City - 1995. 

 

All children must be given the means requisite for its normal development, both materially and spiritually under the first right of the Rights of a Child according to the Geneva Declaration endorsed by the League of Nations and further expanded by the General Assembly of the United Nations. 

 

With my child's Trisomy 13 diagnosis, the medical literature did not show favorable survivability statistics.  I ask you to look beyond the Failure to Thrive issues and treat my child as sick child who needs constant and chronic care.  For that, we will need the physician’s documentation for specified care. 

 

Christian parents are seeking a community of persons to be supportive of special needs children as well as compassionate to underlying spiritual beliefs.  If you are a physician, therapist, educator or other community member called to put into practice these beliefs, feel free to offer your support services to these families.  Links to your business, website or services will be added to our website upon request.    

 

Peace and Blessings to you for your support,

 

© Janina E. Arritola 2006
(used with permission from
http://gregoryarritola.tripod.com/letters.html_

 
 

 
Physician's Home

Not Compatible with Life, a diary of keeping Daniel
By Kylie Sheffield

Prenatal Diagnosis Information Package - Compiled by Kylie Sheffield (mum of Daniel, full Trisomy 13) in consultation with families on this web site

Articles on Eugenics, Ethics, Selective Abortion, Selective Induction and the killing of Disabled Children

Personal Qualms Don't Count: Hospital Forces Nurses To Participate In Genetic Terminations 
by MARNIE KO

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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