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9-2-09
I just wanted to give you a final update on JayLynn. Our sweet angel
JayLynn Mia was born August 25th at 11:52 am at the University of
Utah hospital. She surprised us all by weighing 7 lbs and 8 ounces
at 20.5 inches long. She arrived in her daddy's arms warm and full
of life. Cooing and breathing was the sweetest sound in the whole
operating room. We then welcomed her into our family only a few
short minutes later.
Everyone was overjoyed to see her and hear her. JayLynn received her
blessing and continued to surprise us all. She fought so hard to do
all the things we had hope she would. She enjoyed getting her first
bath with daddy and grandpa Rick, cooing and being ticklish the
entire time.
We were all surrounded by so much love even the photographer felt
it. JayLynn finally went back to her heavenly father two amazing
hours after being born and filling our hearts with so much joy and
love. We didn't think it would be more than seconds and we were
blessed with hours.
It was her big amazing heart that finally said it had enough. She
passed in my husband and I's loving arms so peacefully. We were very
grateful for the time we had and enjoyed kissing, loving and holding
JayLynn.
Monday was JayLynn's funeral, I don't think there could have been
any other mother so happy with the way things went. Lots of family
and friends came to show their support and love for JayLynn. And she
looked so peaceful that I will always remember the look on her
beautiful face. Both of JayLynn's big sisters got to say goodbye and
they told us all how much they loved her. JayLynn has forever
touched our family.
She is an angel and she is looking over us telling us that she is at
peace. My husband and I are so grateful for this website and all the
support we have received though it. We know that our love was never
about how many chromosomes we have but about the way life works and
how much JayLynn changed our lives.
Thank you all and God Bless. We know we will see JayLynn one day and
she will be just as perfect as she was the first time we saw our
angel. xoxo The Burbidges
Update
8-17-09
Dr. Byrun decided that since I delivered my other two pregnancies at
38 weeks that we are going to take JayLynn at 36 weeks. So the 25th
of this month we are going to be having our bundle of joy come into
our lives and stay for how ever long she is willing to be her with
us.
The excitement and nerves are kinda overwhelming. I'm excited to
meet her and see this little person who has put so much faith into
me and my husband. I'm very nervous that I won't be able to say
goodbye and I know that when the time comes I won't want to.
JayLynn has been a blessing to us and she has forever changed our
lives. We had some pictures done and I am enclosing a few. With only
a week left we are taking our time enjoying what time we have as a
family.
My brother recently had a baby and I thought I would have a very
hard time seeing him but it turns out that I'm overjoyed that he is
healthy and beautiful. It helps me to deal with JayLynn and her
passing to know that she will be watching over us, knowing we will
think of her everyday with love and joy. I'm very grateful for the
experience to have someone so special come into our lives and the
fact that I've meet some of the most supportive people.
Thank you very much all of you for everything the prayers, the
gifts, and the joy of knowing I helped someone as you have all
helped my family.
Pictures: Blonde is BriLeigh Brunette is Trinity my husband Cortney
and myself Jessica
 
 Update 7/28/09
I just wanted to give you an update once again. JayLynn has
Holoprosencephaly and full trisomy 13. Her facial features haven't
developed as much as we had hope. I'm struggling with the
gestational diabetes once again. My blood sugars are really high so
we might have to try insulin which is one more thing to add to that
long list of stress lol.
We are enjoying the rest of the short time we have with her which
will be about a month. Dr.Buyrn wants to take JayLynn at 37 weeks so
that i won't put so much stress on her little body. We are doing
this by c-section.
We have been told we will have a short amount of time with our
beautiful gift so it seems like I'm not ready for this month to fly
by. We have been meeting with the Angel Watch ladies and they have
been a great support for both me and my husband.
We did our maternity pictures with Now I Lay Me Down To Sleep which
was a wonderful experience once I get them I will email then so you
can post a new picture. I want to thank everyone who has been an
ear, a shoulder to cry on or someone who has just touched our hearts
with this experience. Thank you all our best the Burbidges
Jessica
Boo_Baby05@hotmail.com
Update 6-24-09
I just wanted to update you on our progress!! We found out she has
full Trisomy 13 and she also has a disorder I forget the name but it
means the fronter part of her brain (in Latin) and before the
doctors said JayLynn (that is what we are naming her) was almost a
month behind well we had another ultrasound and she is only a week
behind so she has caught up!!! We still have hope and we are
sticking with our goals, we found a new doctor her name is Dr. Buryn,
an amazing lady!!
Our main goal is to get her home so she can be
with everyone who loves her. and the doctors have been very
understanding and are going to try to help us reach this goal. We
are still preparing for the worst but hoping for the best. we are
doing fund raiser because the funeral is expensive but I feel her
moving everyday and I'm so grateful for the wonderful people this
has brought into our lives!
I know JayLynn is going to be a fighter
I can feel it and I know our family is going to fight for our newest
blessing!
I just wanted to thank everyone who has come into our
lives and helped us through this it means a lot and we are all very
grateful!! thank you for your time hope everything is well xoxo
Jessica
Boo_Baby05@hotmail.com
5-17-09
Hello
my name is Jessica Burbidge. My due date is September 14th 2009 but
the doctor say I’m measuring small and moved me back about three
weeks. My husband and I just found out at our 20 week
ultrasound that our daughter has Trisomy 13. We don’t know any more
that it’s the 13. We go to the doctor tomorrow to find out all the
information, our options, and try to figure out where to go from
here.
At first we were heart broken and didn’t know what to do the doctor
strongly suggested that we abort the baby but I felt in my heart
that it was not an option. We have two other children both girls
BriLeigh is 3 and Trinity is 2 they are very excited to be big
sisters.
Our entire family supports us and wants all the information they can
get their hands on as well as ourselves. We don’t feel it is our
choice to give up on our little girl before she has a real chance to
show us how strong she is. And we feel that in every way she is a
blessing and can’t wait to have her in our lives.
We live in Tooele, Utah and our e-mail address is
Boo_Baby05@hotmail.com
or
cortneyburbidge@yahoo.com
Jessica |
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