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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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Trisomy13Archive.com


This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see:
http://www.livingwithtri13.org

To UPDATE AN ALBUM
please email Vanessa@livingwithtri13.org

In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page

Evelyne Sofia Gordon

Click here to send an update or photos

April 13, 2009 - April 26, 2009

  Evans, Georgia (GA) - Full Trisomy 13
 

Caringbridge site sharing our
trisomy 13 journey with Evelyne

 
 

 

"Her purpose was felt so immediately by the actions of our immediate family and friends, who helped us greatly make plans.

She was given to us briefly, like all of our children, to be good stewards and to honor Him in our parenthood he has entrusted to us. "

April 30, 2009

Fia went home to be with our Lord on Sunday, at 2:20pm. We had her service yesterday and it was a beautiful service that gave God the glory for the gift he allowed us to have in her.

Please know that the living with trisomy website and ALL of your stories helped us to decide to continue our pregnancy and give her life. Thank you for ALL you did for our family….your stories, emails, testimony, the faces of your beautiful children that helped us to believe that Fia had a purpose to complete here on earth. Mostly, thank you for sharing your courage, it gave us the courage that we needed to “press through”.

Please take some time to read the end of her journey here at her site. www.caringbridge.org/visit/evelynesofia

We love you all.

Neil and Melissa Gordon


fearfully and wonderfully made...
 

- - -

April 12, 2009

Due to some complications with mommy's blood pressure, we will be induced on Monday April 13, 2009. Please keep us all in your prayers and that our angel will be able to stay with us as long as God wills.

Visit our Caringbridge site  for details!

I will update tomorrow as soon as we know.

Thanks
Melissa Gordon
neilandmelissa@comcast.net

 

2-11-09

We are in process of information gathering and decision making…at this point as we pray, we believe our focus to be comfort care and let God lead all decisions. We hope to have some time to love on her before she goes to Heaven!

Neil and Melissa Gordon neilandmelissa@comcast.net

 


 

 

Submitted 2-11-09

 

 
 


 
 

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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