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This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see:
http://www.livingwithtri13.org

To UPDATE AN ALBUM
please email Vanessa@livingwithtri13.org
 

In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page

 Corbin Glen Flax

May 18, 2007 born into earth at 10:12 am - born into heaven at 11:22 am

  WaKeeney, Kansas (KS) - Full Trisomy 13
Robin softball_chik51@yahoo.com is presently living in Shreveport, LA

Click here for Robin's Myspace
Corbin’s Photo Book

 
 

A special thank you to the photographer for her wonderful skill, generosity, and time: Carol Roker of "Reflections by Roker" in Salina, Kansas. Link to video page

Proud Parents ~Curtis and Robin Flax

Update May 28, 2007
It's only been 10 days since my dear son was born into this earth and shortly after, born into heaven. I feel like he never died. He just had 2 birthdays. It's hard to find the words when speaking of those wonderful moments with Corbin. When my water broke on that fateful Thursday, I was full of excitement for I knew I was going to finally meet my little angel. However, I was full of fear as well knowing that we still had 6 weeks left in the pregnancy. I held back the tears on the way to the hospital because the pastor of my church and the youth pastor were driving me there. Even on the way, I knew there wouldn't be much time with Corbin given not only his T13 but also being so premature. I was in labor with him for 23 long hours. I remember, after the epidural kicked in, feeling lots of pressure and calling the nurse over. We were at 7 centimeters. Only about 1-2 minutes later I called her over again because of the pressure. We were at 9 centimeters and doc was on his way. A few seconds later I tried to get her attention and she didn't hear me so I screamed her name because of the pressure again and turned out she actually had to hold Corbin in until the doctor got there. Was sort of funny. The doctor said it was OK to push so I did. Then I made a joke in the middle of pushes and Corbin was born on push number 2. (Jaleigh only took 3 pushes, lol). I was happy that I could finally see his face and very happy when I heard the doctor say, "No stitches".

It seemed like it took forever, but I know it wasn't more than 20-30 seconds before we heard Corbin's first cry. It was more like a squeak (come to find out, that's what I did when I was born. I didn't cry, I just squeaked). As soon as I heard that, I broke down in tears because of the immense joy and yet immense sorrow at the same time. At first I didn't think I was going to hear anything at all. They handed him to me immediately like Curtis and I had requested. So beautiful. So pure. So sweet. And so amazingly soft. I have never felt anything as soft as an angel. Our pastor was called over after a short minute and anointed Corbin.

We were giving him to the Lord all the days of his life just like Hannah promised with her son in the bible. He was passed around the room to the rest of the family once they were allowed in and given lots of love throughout every second of his little life. It broke my heart that about every 5-10 minutes or so, the nurse would come over and check his breathing and his heart rate. We listened to her give us a lower number each time.

We watched him slip away slowly. He was a fighter though because he hung on to life for 70 whole minutes by himself. He was never given any oxygen of any kind. He simply lived on love. I believe he was purposely living as long as he could just for us. Just to love us, not for us to love him. We decided we wouldn't bathe him until after he had passed away.

All of the children helped bathe him, which I think fulfilled a special need for them, for they had anticipated being big sisters and helping care for their little brother. This way, they received a certain amount of closure too by still being able to help at least once. I did request that part of the bath time I be alone with him.

Tears calmly streamed down my face as I finally brought myself to say good-bye to him as I nurtured his tiny little body. After I finished bathing him, I dressed him in a onesie that swallowed him, but cute a button, nonetheless. His little nose was the perfect shape of a heart because of the bilateral cleft lip. The cutest little thing I've ever seen. The rest of my time spent with him was taking more pictures. The photographer, Carol Roker out of Salina, KS, that we contacted from NILMDTS was there throughout most of the labor. She assisted in the labor process actually because she had been there since Thursday night and stayed til 3 or 3:30 pm Friday. She took tons of photos and I can't wait to receive them. We posed for many of them and that was a wonderful experience. Carol was in tears much of the time and it pained her when she had to leave. What a wonderful woman. Corbin stayed with us for another 3 hours. I simply held on to his little body and felt his face against mine. I will never forget how soft he was.

He had reddish blonde hair that was the softest thing I've ever felt and ever will feel again. The funeral director was finally contacted to come and get him and that was the first of many excruciatingly painful moments. Curtis had to be the one to give Corbin to him. Was kind of awkward anyway, because the funeral director is the neighbor from across the street. All of our girls play together all the time. I'm glad Curtis was the one holding him when he came in because there's no way I would have been able to do that. I could have never let him go. I screamed as they went out the door together. I cry just remembering that moment.

Only a few hours later, I was walking around and feeling fine so I convinced the doctor on call to let me go home that very night. I just didn't want to be there anymore and there was nothing else they could do for me. The nurse however was a Godsend. She was with me from the time labor was productive until well after Corbin had left the hospital. I was asleep when she left, but she came back to see us when she heard we were leaving so soon (3 hours after her shift) to say good-bye and to cry with me one last time. She brought with her and little card with a poem and also bought us a tiny gold baby ring that I can wear on a necklace. She helped to make such a sad time a little bit better. I'll never forget her. Her name was Sue.

Thank you for your love and prayers,
Robin

 

__________________________________________

This is the first is a letter that I wrote on the morning of Corbin's funeral service that Pastor Troy read during the service for me and the second is a poem that I wrote the next day as I sat in the sanctuary of the church and prayed for 2 hours.

5-23-07

I had anticipated the day of my son's birth for what seemed like forever. However, I didn't know it would be so soon. I, of course, had created a bond with my son over the past few months through a conversation of kicks and hiccups. That's how we would talk to each other. Hundreds of little "I love yous" I had hoped and prayed for more time with my precious gift, but God gave me 70 wonderful minutes that I will never forget. I don't believe I have ever given or received such an enormous amount of love in such a short period of time, nor will I ever again. Of all the people that were surrounding Corbin and giving him so much love, I believe he gave out more love than he received. I believe Corbin was God's angel before he ever said "Good-bye" I have been given the privilege of holding a real live angel and God gave me the honor of being that angel's mother. I do get to carry with me the memories of this bittersweet time in my life. We saved Corbin's footprints and handprints. One thing I can't bring home, one thing I can't share with everyone is his softness. You just can't save soft. I can keep that in my memories only, but at least I know how an angel feels to the touch. That's something very few people ever experience. The only thing that was missing were his wings, which he has now. He will fly along side me until I see him again.

I love you little Corbin,

Mommy


Every

Every so often,

As the wind comes through,

I hear you whisper softly,

It's okay, Mommy, I love you.



Every now and then,

The sun's rays shine just right,

It's the very color of your hair,

That made me laugh at it's sight.



Every waking moment,

You fill my mind and heart.

Just like you filled my arms that day,

A feeling that will never part.



Every single night,

I pray to see your face.

I feel you sleeping upon my chest,

So I can finally rest in place.



Every so often,

As again the wind comes through,

I whisper back to you little ears,

I know, Corbin, I love you too.

 

- - -

Corbin Glen Flax was born Friday, May 18, 2007 to Curtis and Robin (Martin) Flax in Hays Medical Center at Hays, KS. He passed away soon after birth. He weighed 4 pounds and 2 ounces and was 17 inches long.

The family and all who were present, were overwhelmed with the joy and excitement of hearing Corbin's first cry. In 70 minutes, Corbin became a powerful instrument of God's love and healing power.

Corbin challenged us to look beyond ourselves and to draw nearer to God and to one another. Although his time with was too short, the imprint of his life and love will never be forgotten.

Survivors include his parents, Curtis and Robin Flax, two sisters, Jaleigh Martin and Brenna Flax; paternal grandparents, Janice and LeRoy Flax, all of WaKeeney; and maternal grandparents, Robert and Jo Ann Martin, of Bossier City, LA; paternal great-grandfather, Ignatius Flax, of WaKeeney, and maternal great-grandmother, Dorothy Keen, of Manassas, VA.

Robin and I would like to thank each and every one of you for the prayers, support and everything you have all done for us. You have all been amazing.
 

- - -

Hello. My name is Curtis Flax and my wife’s name is Robin. I am father to two beautiful daughters and soon our first son.

We have recently found out our child has a severe case of Trisomy 13. Our child is not expected to make it to full term. An abortion was recommended but we do not believe that is Gods way. So that was immediately out of the question. We know what the end will be due to the severe abnormalities.

I would like to thank each and everyone of you here that has prayed for myself my wife our children and for Corbin, your prayers are helping and without you we wouldn’t have know which way to go to start with. Thank you all and you are all in our prayers each night.

Curtis and Robin Flax softball_chik51@yahoo.com
Jaleigh Martin, 5
Brenna Flax, 6
 


Here are Corbin's ultrasound pics at 24 weeks gestation. I love the one of his feet.

 
“Here is a picture someone sent to me just because they thought it was beautiful. I agree it is beautiful, however the first thing I thought of is perfection vs. imperfection. The picture is in fact a real picture, not Photoshop. Clouds have to be cirrus, at least 20,000 ft. high, with just the right amount of ice crystals, and the sun has to hit at precisely 58 degrees. When you close your eyes and envision a perfect rainbow, most likely this is not what you would see. You would see a perfect arch with all the colors completely visible and as vibrant as ever. In logical thinking this rainbow is far from perfect. The way I figure it, if God can make a rainbow as imperfect as this one but it still be just as beautiful if not more beautiful than a so called perfect one, then I can only imagine how beautiful my baby boy is going to be. I can hardly wait to find out. Perfection is often the result of imperfection."
 

 

 

 

 

Have a child living with Trisomy 13??  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)

 

 


 
 

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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