I am Shea Barja, Van's grandmother. My email address is:
We knew in our hearts that Heaven was Vanís home and that he would only be with
us for a short while. Still, it wasnít easy to let him go. He arrived on October
4th, 2006 , after a normal pregnancy and delivery. Unknown to us during those
nine months of joy and anticipation, Van was growing peacefully in my
daughter-in-lawís womb with full trisomy 13. The doctors didnít expect him to
live through the night, much less the thirty six days in which he graced our
Although I had four other grandchildren at the time, Van was the most
beautiful baby I had ever seen. He had an aura about him that was indeed
Heavenly. His time here was very intense for our whole family.
I admire my son
and daughter-in-law for loving Van so lavishly, enjoying every minute with him,
knowing it could be his last. It broke my heart to see my children suffer, just
as my children hurt to watch their own child suffer. But I never prayed for
Vanís healing. How could I ask God to fix one who was so perfect?
I only prayed
for his comfort and that we could let Van go when it was time to say goodbye.
Having Van was like winning the lottery. One out of five thousand babies are
born with full trisomy 13. How fortunate and thankful we are that God entrusted
us with such a wonderful gift as Van. He forever altered our lives, but we
wouldn't have it any other way. We have scars, and wounds in our hearts that
still break open and bleed, but scars tell stories, and Vanís is such a
beautiful story, one that I am always happy to share.
Vanís mom is Robin Barja email@example.com