Home SEARCH About This Site Site Visitor Comments Website NEWS & UPDATES Contact
Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM

Trisomy13Archive.com


This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see:
http://www.livingwithtri13.org

To UPDATE AN ALBUM
please email Vanessa@livingwithtri13.org

In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page

 Michael Dominic Moore

Click here to send an update or photos

 

  Portland, Oregon (OR)

Andrea is available for immediate phone support  503.686.1578

 

Channel 2 - KATU caught wind of our tribute and ran a special story on Friday night & Saturday morning. 
 

 
 
Hello,

(these are quick email additions- more of Michaels story to come)
This is the only photo with the WHOLE family (all five of us).  Some of these are my favorites, especially the one in the carseat with his eyes open!! It was his only car ride (home from the NICU) and one the four times his eyes were OPEN! They said he could not see, but I know he could see his mommy & daddy loving him and the Lord opening his arms to him!
 
Also, we were soooo blessed to have pics taken of Michael on the morning he passed, only 6 hours before going to Heaven (by awesome folks from NILMDTS). they are spectacular photos and I will find a way to download them b/c the video is too big to email and we have not yet received the singles off a disc from Emma & Will (our photographers). it's been a long, hard process... you know. sometimes it takes you a year just to do a simple thing like develop a pic then you can do something huge (like the callas!) in a week.... funny how grief is. ok, enjoy our family!  ;-)

Andrea & Dominic Moore

Sisters: Sophia 11 yrs. & Madeline "Maddy" - 2 yrs. old
Andrea Moore akarguedas@yahoo.com

 
 

 

Submitted 6-14-09

 

Have a child living with Trisomy 13?  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)
 
 


 
 

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

Translation
Search Specific Languages or Countries

 

s