Evan Andrew Bumgarner was born on March 10, 2009 in Little Rock, Arkansas. We
are from Fort Smith, Arkansas, but we knew Evan had Double outlet right
ventricle with VSD so he was born at a hospital 2 miles from Children's and the
We did not know Evan had Trisomy 13 until March 13th, trisomy awareness day.
When he was born he did not try to breath so they put him on a vent. Then they
started noticing he had six fingers on each hand, and his ears were low set.
When the doctor came in and told us there may be some other issues, Sean told
him there were six toes on one foot also. They also discovered he had rocker
bottom feet. He was transferred to Children’s about an hour after he was born.
The first night was a blur for Sean. He had gone with Evan and they were
running test and several doctors were in and out all night. They were able to
stabilize Evan and even take him off the vent. We had a goal of taking him home,
but God had other plans.
On March 16th Evan went from his Earthly fathers arms to his Heavenly Fathers
arms. We cherish those six precious days.
Evan was full Trisomy 13.