Evan Andrew Bumgarner - Trisomy 13 Memory Album

In Loving Memory of This Treasured
Trisomy 13 Child

	Evan Andrew Bumgarner		March 10, 2009 - March 16, 2009
	Little Rock, Arkansas (AK) - Full Trisomy 13 - Double Outlet Right Ventricle with a ventricle septal defect , extra pinky fingers on each hand and an extra pinky toe on one foot , rocker bottom feet He was blind because of an underdeveloped macular and retina and he had cataracts		Open Blog
	Evan Andrew Bumgarner was born on March 10, 2009 in Little Rock, Arkansas. We are from Fort Smith, Arkansas, but we knew Evan had Double outlet right ventricle with VSD so he was born at a hospital 2 miles from Children's and the Cardiovascular ICU. We did not know Evan had Trisomy 13 until March 13th, trisomy awareness day. When he was born he did not try to breath so they put him on a vent. Then they started noticing he had six fingers on each hand, and his ears were low set. When the doctor came in and told us there may be some other issues, Sean told him there were six toes on one foot also. They also discovered he had rocker bottom feet. He was transferred to Children’s about an hour after he was born. The first night was a blur for Sean. He had gone with Evan and they were running test and several doctors were in and out all night. They were able to stabilize Evan and even take him off the vent. We had a goal of taking him home, but God had other plans. On March 16th Evan went from his Earthly fathers arms to his Heavenly Fathers arms. We cherish those six precious days. Evan was full Trisomy 13. Monica monica6575@sbcglobal.net

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Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.

*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.

In Loving Memory of This Treasured Trisomy 13 Child

In Loving Memory of This Treasured
Trisomy 13 Child