Home SEARCH About This Site Site Visitor Comments Website NEWS & UPDATES Contact
Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM

Trisomy13Archive.com


This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see:
http://www.livingwithtri13.org

To UPDATE AN ALBUM
please email Vanessa@livingwithtri13.org

About this Web Site

February 2006 - A year of Growing in Love

In September of 2004 I was  contacted by three different families within the same week who had terminated their trisomy 13 child.  They were told there was no hope or sense in bringing their child to term and giving birth with the “incompatible with life” diagnosis.  (All were encouraged by the those around them to end the pregnancy.) I began searching the internet for “living trisomy 13” children - looking for long term survivors. I knew there must be more out in the world as we had two other living  Patau Syndrome children in our county.  

Having a website for our own journey since March of 2001, I knew we could create a page specifically for trisomy 13 family support.  By October we had 8 families on a page off our Healing Power of Prayer site. Sweet Gabriella was one of our first newborn babies who found our pages. Just a month old,  we were so happy to have met a family in the early stages of the trisomy journey.  Sadly Gabriella’s time on earth was to be short, she would be our first Treasured Memory. Gabriella was our first Angel to go home to heaven and while deciding exactly how the new memory page would be created, we met Maria’s mom  - Pamela.  

Trisomy 13 Child Maria held by mom PamelaPam sent us a beautiful photo holding her sweet child. Cherishing each precious moment with her child, who’s life was all too brief....  With that photo, the new web site was inspired and created.  “Living with Trisomy 13”  and the Treasured Memories of Gabriella, Maria, Kia and Katie would soon start the full page of living angels that you see today.

On our 1st year Anniversary of the websites creation, we celebrate new lives, siblings of our trisomy angels. Siblings to bring their families' joy and love – and to continue their families' journey of living with a trisomy 13 diagnosis. Gabriella’s brother, Lucian Michael Harmon; and Maria’s brother, Nathaniel Robert Sullivan.

Please join us in prayer daily for all of our Trisomy families as we celebrate each unique life.  May God give us the courage we need,  to continue the journey before us, as we learn to Grow in Love with our sweet miracles of life.

ThereseAnn, site owner and mom to Natalia

 


 

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

Translation
Search Specific Languages or Countries