Florida Licensed - Nationally Certified Professional Midwife
My professional history is as a Florida Licensed and Nationally
Certified Professional Midwife since 1997 and I am currently pursuing a degree
to work and becoming licensed and certified as a Physician's Assistant.
My personal history is that I am married to Matt and the mother
of five children; Ben-10/11/84, Jake-11/28/99, Zack-11/8/07, Chloe-5/10/01 and
Emma Grace in
heaven-12/2/03 to 12/15/03 who died from Congestive Heart Failure due to Double
Outlet Right Ventricle, which was caused by full Trisomy 18. Notice I do not say
she died from Trisomy 18, as she did not. The abnormal number of chromosomes,
and extra genetic material caused her body to have medical complications.
These medical complications threatened and ultimately took her
life. I have made it a personal mission since then to help other families facing
the same diagnosis. Mostly because we fought hard to try to get surgery for
Emma's heart condition, in order to bring her home and let her have the best
life possible and reach her full potential. We had to fight two different
hospitals and many different doctors over her almost two weeks of life. We
failed and that is wrong, Emma should have been given a chance and without that
surgery, she could not survive.
Being in the health care profession, I understand medical
jargon, policies and procedures and yet it was the most overwhelmingly difficult
situation I have ever faced. From talking to the many different doctors, to
making day to day decisions and balancing those decisions with the rest of the
families needs, my medical background helped us to get through it. I cannot
imagine how difficult it is for those who do not have that background to help.
That is where I have tried my best to help other families. Many other families
have contacted me over the past two years who just want answers, need guidance,
or simply want to know what to do. Although I cannot tell anyone what to do, I
can help them to wade through all the medical information and clarify the
realities in order for them to make their best decision about their child and
family. As a Licensed Midwife, I have been doing that for almost nine years.
We continue to raise much needed funds for research. In
addition, my husband and I started the
Day of Grace Benefit Golf Tournament and Charity Auction in May of 2004. We
have hosted two events so far and continue to raise much needed funds for
(Be sure to include in the subject line Trisomy support)
Phone number available with email request