Hello. My name is Madelene Håkansson and I live in Sweden. In June
26 2008 I welcomed my second son, Love. When he was 8 days we found
out that he has full trisomy 13.
Love is not a very good sleeper but he is a good eater! When he was
7 months he got a "button" in his stomach. But we never use it
because now he eats all his food in his mouth. He throws up a lot
(reflux) but the weight is ok (soon 8 kg) so I guess he keeps what
When Love was 6 months he had his first attack of cramp where he
stopped breathing. The following weeks he had many many more but
now, with medications they only come once or twice a week and only
last a short time.
Now, we are looking forward to have a huge birthday party!