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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see:

http://trisomy.org

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Living with Trisomy 13 - Patau's Syndrome

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Katya Maria Sansalone

25 August 2001

Canada - Full Trisomy 13

All photos Copyright - S. N. Sansalone & Family

 

Katya is one of the happiest people we have ever known.

Some health details: Tetralogy of Fallot repair cardiac surgery done in Toronto in 2001. Multiple GI Surgeries, other surgeries.

No current/remaining life-threatening conditions. (Over 40 other non-life-threatening medical conditions being followed).


Father: Sam N. Sansalone
 

More Information:

CFMU Radio; Hamilton, Ontario; disRespect with Geoff Langhorne; radio interview 090430, as reformatted and rebroadcasted on second occasion in '09
http://www.radio4all.net/index.php/program/36742

Speech to the Press, US Capitol, 15 September 2009; audio MP3
http://www.cwfamedia.org/media/cw20090916e.mp3
http://www.cwfa.org/articles/17734/CWA/freedom/index.htm

LifeSiteNews.com editorial where they correlate similar cases and views in the country and making an interesting broader ethical/societal application:
http://www.lifesitenews.com/ldn/2010/jan/10012009.html

The Steve Malzberg Show; WOR 710 AM, New York
The Case of Baby Isaiah
 

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University of Alberta; CACL National Series of Public Dialogues, Alberta Segment, October 2007:

Part 1 of Panelist SNS's Reporting: "Living With Trisomy 13, Part 1: Stereotype Propagation and the Illusion of Choice”"
http://whatsortsofpeople.wordpress.com/2009/01/25/living-with-trisomy-13-stereotype-propagation-and-the-illision-of-choice/

Part 2 of Panelist SNS's Reporting: "The Monitor"
http://whatsortsofpeople.wordpress.com/2009/01/29/living-with-trisomy-13-part-2-the-monitor/

Partial Follow-up Commentary by SNS: "Vulnerability, Trust, and Confrontation"
http://whatsortsofpeople.wordpress.com/2009/02/07/vulnerability-trust-and-confrontation/

Concluding Commentary: "Disability, Individual Autonomy, and Systematic Devaluation"
http://whatsortsofpeople.wordpress.com/2009/02/22/disability-individual-autonomy-and-systematic-devaluation/

The rest of the videos from that event can be found at:
http://whatsortsofpeople.wordpress.com/2009/02/25/the-modern-pursuit-of-human-perfection-the-full-story/

Regarding the University's What Sorts of People research project for context:
http://www.whatsorts.net/

Additional related links at http://whatsortsofpeople.wordpress.com/2009/02/25/the-modern-pursuit-of-human-perfection-the-full-story/

 

 

Submitted 2-5-2010

The views expressed on this website/publication do not necessarily reflect the views of S. N. Sansalone or the Sansalone family
 

 

 
 


 
 

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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