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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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Living with Trisomy 13 - Patau's Syndrome

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Fredrick Jr.

Born: August 17, 2008

  Macon, Georgia (GA)    
 

Update 8-17-09

Thanks to all for your prayers and faith. Miracles do happen every day!
Look who just turn 1!!!!!! Keep trusting God, and never give up. If God leads you to it, he will lead you through it.

- - -
 

3-13-09

Fredrick is a few days away from turning 7 months old, and he is doing fabulous. He still needs .5 liters of oxygen everyday. On occasion we will turn it off and let him breathe on his own. We still continuously feeding 24 hours with the pump, we’ve tried bolus feeds but his sugar keeps dropping.

Fredrick is a "True Miracle Angel" and every day we have with him is a Gift from God.
Psalm 139: 13-16

Lani (Fredrick's mom)
boyington2@cox.net
 


 

 

Submitted 3-13-09

 

 
 


 
 

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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