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This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see: http://www.livingwithtri13.org To UPDATE AN ALBUM please email Vanessa@livingwithtri13.org |
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This is an archive of the LivingWithTrisomy13.org site (2005-2010) for current information please see: http://www.livingwithtri13.org To UPDATE AN ALBUM please email Vanessa@livingwithtri13.org |
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| ClinicalTrials.gov (Trisomy 13) & ClinicalTrials.gov (Patau Syndrome) A Service of the U.S. National Institutes of Health | |
Southern Illinois University TRIS -
Tracking Rare Incidence SyndromesThe Tracking Rare Incidence Syndromes (TRIS) project seeks to increase awareness and knowledge for families and professionals touched by rare trisomy conditions and aims to facilitate improved decision making for optimal services and supports for children and their families. TRIS Tracking Rare Incidence Syndromes – IN THE NEWS
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Columbia University Medical Center NEW Research Study for Families with Chromosome 13 Disorders This study will separate which features of trisomy 13 are associated with which parts of the chromosome, this study would apply ONLY to those children with partial trisomy 13, either due to a translocation or all by itself. These children are very rare, and would be a great contribution to this research. |
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Have a child living with Trisomy 13 syndrome
- a Patau syndrome survivor?
We
would love to add your child to our Album..
Click here to send us
their information.
Click here to visit a translation of a German Trisomy
13 photos site
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Translation